Privacy Policy

SOLVE Privacy Policy

SOLVE FSHD Holdings Ltd. (“SOLVE”, “us”, “we”, or “our”) operates the http://www.solvefshd.com/ website (the “Site”).This page informs you of our policies regarding the collection, use, and disclosure of personal data when you use our Site and the choices you have associated with that data.

PURPOSE AND SCOPE

This Privacy Policy discloses what information we gather about you when you use our Site. It describes how we use that information and how you can control it.

EFFECTIVE DATE

This policy is effective as of August 1, 2022.

INFORMATION SOLVE COLLECTS

SOLVE collects two kinds of information about visitors: 1) data that visitors volunteer by using our contact form; and 2) aggregated tracking data we collect when visitors interact with our Site.

PERSONAL INFORMATION

When you use our contact form, we may need to ask you for personal information such as your name, address, email address and telephone number. If you choose to provide us with information regarding a medical condition, we will use this information in conjunction with our use of your other personal information, as set forth in this privacy policy.

We do not send you information unless you request it, or we believe that the information would benefit your business needs. If you do not want to receive further information from us, simply contact us at [email protected] and request to be removed from the contact list. Once we receive your request, we will use commercially reasonable efforts to remove your name from the contact list. If you wish to update any of your personal information, please contact us at such email address, and we will use commercially reasonable efforts to update your contact information accordingly. Please be aware, however, even if we update your personal information in our contact list, or we remove such information, it may still be stored in other databases (including those kept for archival purposes) and may still be used to compile aggregated or demographic information for supply to third parties in accordance with this Privacy Policy. It is our policy to not provide information that identifies you personally to a third party without your permission, except to process or fulfill your requests, or as otherwise set forth in this privacy policy.

NON-IDENTIFYING INFORMATION

We may collect information about our visitors, customers, page views, traffic patterns and related Site information. This information helps us evaluate and improve the Site and is sometimes useful for marketing and investment analysis. We may share this information with third parties, but only in aggregate statistical form that includes no personally identifying information.

USE OF COOKIES

Cookies are small files that many web sites place on your hard drive that allow such web sites to identify you. The use of cookies is a standard and common practice of many web sites. For example, if you allow a site to remember your login name or password, the site places a cookie on your computer. We may place cookies on your computer to allow us to identify you during future visits to our Site. We may use cookies to measure traffic, to offer you certain services and to customize your visit. However, if you do not wish to receive cookies, or want to be notified of when they are placed, your browser may permit you to do so. In many browsers, you can change the browser settings to warn you before accepting cookies or to block cookies. If you block cookies, you may not be able to use certain site features or functions, or the Site may not operate in an optimal mode.

DISCLOSURE TO THIRD PARTY SERVICE PROVIDERS

Certain third-party service providers that we use to enable us to provide the Site and related services may have access to your personal information. These third-party service providers are required not to use your personal information other than to provide the services requested by SOLVE. You expressly consent to the sharing of your personal information with our service providers for the purpose of providing such services.

SECURITY

We use reasonable security procedures to protect the information you share with us from unauthorized access or disclosure.

PRIVACY PROTECTIONS FOR CHILDREN

Our Site is not directed at children. Therefore, we do not wish to receive, nor do we knowingly collect personal information from minors.

LINKED SITES

Our Site may link to other web sites not controlled by SOLVE. Although we try to be careful in the selection of our strategic service and technology partners, we are not responsible for the privacy or security practices of any other web sites, and you acknowledge and agree that any use of such other web sites is entirely at your own risk. You should carefully review the privacy and security practices of the other web sites before you provide such web sites with any of your personal information.

EUROPEAN UNION USERS

YOU EXPRESSLY CONSENT TO SOLVE’s PROCESSING OF YOUR PERSONAL INFORMATION IN ACCORDANCE WITH THIS PRIVACY POLICY. YOUR PERSONAL INFORMATION MAY BE PROCESSED BY SOLVE IN THE COUNTRY WHERE IT WAS COLLECTED AND IN CANADA, LAWS REGARDING PROCESSING OF PERSONAL INFORMATION MAY BE LESS STRINGENT THAN THE LAWS IN YOUR COUNTRY.

IF YOU REPRESENT AN ORGANIZATION, YOU WILL BE RESPONSIBLE TO ENSURE THAT EACH MEMBER OF YOUR ORGANIZATION (INCLUDING EMPLOYEES AND CONTRACTORS) ABOUT WHOM PERSONAL INFORMATION MAY BE PROVIDED TO SOLVE HAS GIVEN THEIR EXPRESS CONSENT TO SOLVE’s PROCESSING OF SUCH PERSONAL INFORMATION.

OTHER DISCLOSURES

Although your privacy is very important to us, due to the existing legal, regulatory, technical and security environment, we cannot fully ensure, nor do we represent or warrant, that your private communications and other personal information will not be disclosed to third parties. For example, we may be required to disclose your personal information to the government or other third parties under certain circumstances, or third parties may unlawfully intercept or access transmissions or private communications. Additionally, in the unlikely event we need to investigate or resolve possible problems or inquiries, we can (and you authorize us to) disclose any information about you (including personal information) to private entities, law enforcement or other government officials as we, in our sole discretion, believe necessary or appropriate. In all instances, we will cooperate fully when required by law to provide information regarding visitors.

CHANGES TO THE PRIVACY POLICY

SOVLE reserves the right to change this privacy policy at any time. If we update this privacy policy, we will place a notice on our Site indicating such update. You are responsible to review the updated privacy policy so that you are aware of our then-current privacy practices. If you object to any such changes, you must cease using our website. Continued use of our Site following notice of any such changes shall indicate your acknowledgement of such changes and agreement to be bound by the terms and conditions of such changes.

Transfer of Information

Notwithstanding anything expressed or implied in this privacy policy, in connection with an assignment, sale, joint venture or other transfer or disposition of some or all of the assets of SOLVE or its affiliated entities, you agree that we can accordingly assign, sell, license or transfer any information, including personal information, that you have provided to us to those third parties directly involved in the transfer or disposition of such assets.

Incorporation

This Privacy Policy is incorporated into and made part of the SOLVE Terms of Use, which can be found below.

If you have any questions about this Privacy Policy, please contact us:

By email: [email protected]

Terms of Use

Thank you for visiting the Solve FSHD Holdings Ltd (“SOLVE”) website (“SOLVE Site”). SOLVE FSHD provides this website to you subject to the following Terms of Use (“Terms”) which may be updated by SOLVE FSHD from time to time without notice to you, and which updates become effective when posted.

You agree to be bound to these Terms and indicate such agreement by any access or use of the SOLVE Site.

NO UNLAWFUL OR PROHIBITED USE

As a condition of using the SOLVE Site, you agree that you will not alter, use, transmit, repurpose, sell, copy, distribute or display any portions of the SOLVE Site without written consent from SOLVE. This includes all graphics and site content.

NO WARRANTY, DISCLAIMER

SOLVE does not warrant or make any representations or claims as to the validity, correctness, currency or otherwise of the information provided at this site, nor shall it be liable or responsible for any claim or damage, direct or consequential, arising out of the interpretation, failure of performance, error in content, delay in operation of site, computer virus, reliance upon or other use, authorized or unauthorized, of such information. All information on the SOLVE Site is provided solely on an “AS IS” basis.

MEDICAL DISCLAIMER

The information contained on the SOLVE Site is presented for the sole purpose of educating people about FSHD, is provided for general use only, is not to be used in any respect for diagnosis, care or treatment decisions related to FSHD, and does not offer medical advice. SOLVE strongly recommends that decisions related to FSDH only be made in consultation with a patient’s physician or other qualified health care professionals.

INDEMNIFICATION

You agree that you will indemnify and hold harmless SOLVE and its officers, directors, agents, employees, and volunteers from any and all claims, actions, suits, liabilities, costs, damages, and expenses, arising out of or related to your access or use of, or your inability to access or use, SOLVE Site or the information, services, products or messages contained in the SOLVE Site or other web sites to which it is linked.

WAIVER OF CLAIMS

To the maximum extent permitted under applicable law, you hereby expressly release and forever waive any and all claims you may have against SOLVE, its officers, directors, agents, employees, and volunteers for losses or damages you sustain in connection with your use of the SOLVE Site.

TRADEMARK INFORMATION

The name and mark, SOLVE, and its logos and taglines, are trademarks of SOLVE and may not be used or reproduced without its prior written consent, which consent may be granted or withheld in SOLVE’s sole discretion.

Unless otherwise indicated, all information contained in the SOLVE Site is copyrighted and proprietary information of SOLVE, and may not be reproduced, published, transmitted or distributed in any manner without the prior written consent of SOLVE, which consent may be granted or withheld at SOLVE’s sole discretion.

LINKS

Any third-party link contained on the SOLVE Site is provided for convenience only. SOLVE makes no representation, warranty or endorsement to any of the information, services, or messages on any other web sites which may be accessed through a hyperlink on the SOLVE Site.

ADDITIONAL REPRESENTATIONS AND WARRANTIES

You represent, warrant, and covenant that (a) you have the power and authority to enter into this Agreement; (b) you are at least eighteen (18) years of age; and (c) you will only use the SOLVE Site in accordance with these Terms.

GENERAL TERMS

If any provision of these Terms is held to be invalid or unenforceable, such provision shall be struck and the remaining provisions shall be enforced. Headings are for reference purposes only and in no way define, limit, construe or describe the scope or extent of such section. SOLVE’s failure to act with respect to a breach by you or others does not waive its right to act with respect to subsequent or similar breaches.

If you have any questions about our terms of use or privacy policy, or would like more information about SOLVE, or are experiencing technical trouble, please contact us.

Definitions

Service Service is the http://www.solvefshd.com/ website operated by SOLVE FSHD

Personal Data Personal Data means data about a living individual who can be identified from that data (or from those and other information either in our possession or likely to come into our possession).

Usage Data Usage Data is data collected automatically either generated by the use of the Service or from the Service infrastructure itself (for example, the duration of a page visit).

Cookies Cookies are small pieces of data stored on your device (computer or mobile device).

Data Controller Data Controller means the natural or legal person who (either alone or jointly or in common with other persons) determines the purposes for which and the manner in which any personal information are, or are to be, processed. For the purpose of this Privacy Policy, we are a Data Controller of your Personal Data.

Data Processors (or Service Providers) Data Processor (or Service Provider) means any natural or legal person who processes the data on behalf of the Data Controller. We may use the services of various Service Providers in order to process your data more effectively.

Data Subject (or User) Data Subject is any living individual who is using our Service and is the subject of Personal Data.

INFORMATION COLLECTION AND USE

We collect several different types of information for various purposes to provide and improve our Service to you.

TYPES OF DATA COLLECTED

Personal Data

While using our Service, we may ask you to provide us with certain personally identifiable information that can be used to contact or identify you (“Personal Data”). Personally identifiable information may include, but is not limited to:

Email address

First name and last name

Phone number

Cookies and Usage Data

We may use your Personal Data to contact you with newsletters, marketing or promotional materials and other information that may be of interest to you. You may opt out of receiving any, or all, of these communications from us by following the unsubscribe link or instructions provided in any email we send.

Usage Data

We may also collect information on how the Service is accessed and used (“Usage Data”). This Usage Data may include information such as your computer’s Internet Protocol address (e.g. IP address), browser type, browser version, the pages of our Service that you visit, the time and date of your visit, the time spent on those pages, unique device identifiers and other diagnostic data.

Tracking and Cookies Data

We use cookies and similar tracking technologies to track the activity on our Service and hold certain information.

Cookies are files with a small amount of data which may include an anonymous unique identifier. Cookies are sent to your browser from a website and stored on your device. Tracking technologies also used are beacons, tags, and scripts to collect and track information and to improve and analyze our Service.

You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. However, if you do not accept cookies, you may not be able to use some portions of our Service.

Examples of Cookies we use:

Session Cookies. We use Session Cookies to operate our Service.

Preference Cookies. We use Preference Cookies to remember your preferences and various settings.

Security Cookies. We use Security Cookies for security purposes.

USE OF DATA

SOLVE FSHD uses the collected data for various purposes:

To provide and maintain our Service

To notify you about changes to our Service

To allow you to participate in interactive features of our Service when you choose to do so

To provide customer support

To gather analysis or valuable information so that we can improve our Service

To monitor the usage of our Service

To detect, prevent and address technical issues

To provide you with news, special offers and general information about other goods, services and events which we offer that are similar to those that you have already purchased or enquired about unless you have opted not to receive such information

LEGAL BASIS FOR PROCESSING PERSONAL DATA UNDER GENERAL DATA PROTECTION REGULATION (GDPR)

If you are from the European Economic Area (EEA), SOLVE FSHD legal basis for collecting and using the personal information described in this Privacy Policy depends on the Personal Data we collect and the specific context in which we collect it.

SOLVE FSHD may process your Personal Data because:

We need to perform a contract with you

You have given us permission to do so

The processing is in our legitimate interests and it’s not overridden by your rights

To comply with the law

RETENTION OF DATA

SOLVE FSHD will retain your Personal Data only for as long as is necessary for the purposes set out in this Privacy Policy. We will retain and use your Personal Data to the extent necessary to comply with our legal obligations (for example, if we are required to retain your data to comply with applicable laws), resolve disputes, and enforce our legal agreements and policies.

SOLVE FSHD will also retain Usage Data for internal analysis purposes. Usage Data is generally retained for a shorter period of time, except when this data is used to strengthen the security or to improve the functionality of our Service, or we are legally obligated to retain this data for longer time periods.

TRANSFER OF DATA

Your information, including Personal Data, may be transferred to — and maintained on — computers located outside of your state, province, country or other governmental jurisdiction where the data protection laws may differ from those from your jurisdiction.

If you are located outside Canada and choose to provide information to us, please note that we transfer the data, including Personal Data, to Canada and process it there.

Your consent to this Privacy Policy followed by your submission of such information represents your agreement to that transfer.

SOLVE FSHD will take all steps reasonably necessary to ensure that your data is treated securely and in accordance with this Privacy Policy and no transfer of your Personal Data will take place to an organization or a country unless there are adequate controls in place including the security of your data and other personal information.

Disclosure of Data

Disclosure for Law Enforcement

Under certain circumstances, SOLVE FSHD may be required to disclose your Personal Data if required to do so by law or in response to valid requests by public authorities (e.g. a court or a government agency).

Legal Requirements

SOLVE FSHD may disclose your Personal Data in the good faith belief that such action is necessary to:

To comply with a legal obligation

To protect and defend the rights or property of SOLVE FSHD

To prevent or investigate possible wrongdoing in connection with the Service

To protect the personal safety of users of the Service or the public

To protect against legal liability

SECURITY OF DATA

The security of your data is important to us, but remember that no method of transmission over the Internet, or method of electronic storage is 100% secure. While we strive to use commercially acceptable means to protect your Personal Data, we cannot guarantee its absolute security.

YOUR DATA PROTECTION RIGHTS UNDER GENERAL DATA PROTECTION REGULATION (GDPR)

If you are a resident of the European Economic Area (EEA), you have certain data protection rights. SOLVE FSHD aims to take reasonable steps to allow you to correct, amend, delete, or limit the use of your Personal Data.

If you wish to be informed what Personal Data we hold about you and if you want it to be removed from our systems, please contact us.

In certain circumstances, you have the following data protection rights:

The right to access, update or to delete the information we have on you. Whenever made possible, you can access, update or request deletion of your Personal Data directly within your account settings section. If you are unable to perform these actions yourself, please contact us to assist you.

The right of rectification. You have the right to have your information rectified if that information is inaccurate or incomplete.

The right to object. You have the right to object to our processing of your Personal Data.

The right of restriction. You have the right to request that we restrict the processing of your personal information.

The right to data portability. You have the right to be provided with a copy of the information we have on you in a structured, machine-readable and commonly used format.

The right to withdraw consent. You also have the right to withdraw your consent at any time where SOLVE FSHD relied on your consent to process your personal information.

Please note that we may ask you to verify your identity before responding to such requests.

You have the right to complain to a Data Protection Authority about our collection and use of your Personal Data. For more information, please contact your local data protection authority in the European Economic Area (EEA).

SERVICE PROVIDERS

We may employ third party companies and individuals to facilitate our Service (“Service Providers”), to provide the Service on our behalf, to perform Service-related services or to assist us in analyzing how our Service is used.

These third parties have access to your Personal Data only to perform these tasks on our behalf and are obligated not to disclose or use it for any other purpose.

LINKS TO OTHER SITES

Our Service may contain links to other sites that are not operated by us. If you click on a third party link, you will be directed to that third party’s site. We strongly advise you to review the Privacy Policy of every site you visit.

We have no control over and assume no responsibility for the content, privacy policies or practices of any third party sites or services.

CHILDREN’S PRIVACY

Our Service does not address anyone under the age of 18 (“Children”).

We do not knowingly collect personally identifiable information from anyone under the age of 18. If you are a parent or guardian and you are aware that your Children have provided us with Personal Data, please contact us. If we become aware that we have collected Personal Data from children without verification of parental consent, we take steps to remove that information from our servers.CHANGES

We may update our Privacy Policy from time to time. We will notify you of any changes by posting the new Privacy Policy on this page.

We will let you know via email and/or a prominent notice on our Service, prior to the change becoming effective and update the “effective date” at the top of this Privacy Policy.

You are advised to review this Privacy Policy periodically for any changes. Changes to this Privacy Policy are effective when they are posted on this page.

If you have any questions about this Privacy Policy, please contact us:

By email: [email protected]